NEWS

Join the SMILES BACK study!


Cow’s Milk Protein Allergy also known as Cows Milk Allergy, is one of the most common food allergies in the first year of life and it affects approximately 3% of infants worldwide. The aim of Medullan’s SmilesBack study is to evaluate the use of a new mHealth app that helps caregivers identify, track and report clear, accurate information to their doctors about babies’ signs and symptoms that may be related to Cow’s Milk Allergy (CMA).

If you wish to join the study please click here.


The journey from observing symptoms to getting a diagnosis can be, for many parents, a painful, stressful and lengthy process. As some CMA-related symptoms may also indicate other conditions, confirmed diagnosis can be a challenge. When a baby continues to suffer, despite many health visits and treatment attempts, the whole family can be burdened. Appropriate diagnosis and management by a healthcare professional can bring back smiles to babies and their family.



The app has been developed with primary care physicians, as well as key experts in paediatric care and allergies. This tool helps you learn more about your baby’s symptoms and easily keep track of them. The information you record is compiled in a convenient report that you can share with your child’s doctor, helping his/her evaluation.


By participating, you can increase your knowledge of CMA, easily track symptoms, and share useful information with your doctor. You can also contribute to the improvement of the tool.


You are eligible to participate if:


  • You are 18 years or older
  • Your child is less than 12 months old
  • You live in the United Kingdom
  • You use an Android smartphone with an internet connection and Operating System 4.1 and above



And your child is experiencing one of the following symptoms:


  • Hard stools or constipation
  • Liquid stools
  • Spitting up more than half a feed, once per day
  • Skin irritation (e.g., hives, rash, swelling)
  • Crying more than 4 hours per day

Published - 27/02/2017

Changes to Prescribing Baby Milk

During 2016 and continuing into 2017 many of the local CCGs within NHS England have held or are holding public consultations regarding how certain medicines, medical equipment, food items (such as gluten free foods,) and baby milk formula are prescribed.


Unfortunately in some areas these consultations have resulted in changes to how specialist formula, used for the management of CMPA may be prescribed.  The CCGs for Croydon and Richmond held their consultations recently and this unfortunately has caused a lot of confusion for parents. The wording of the consultation has not been clear and at this stage it is uncertain whether EHf and AAf will still be prescribed where a patient has a primary care diagnosis of CMPA. We will update this section with any new information as and when it is released.


CMPA Support released the following statement as our official stance to all CCGs who may be considering stopping provisions of baby milk formula;


'To CCGs, CMPA Support understand the need to cut costs at GP level and support CCGs in what is an extremely difficult task. We agree with removing provisions for milk formula which are readily available in supermarkets and at a reasonable price, however we cannot support the removal of provisions for the highly specialised Ehf and AAf for babies diagnosed with CMPA. Our stance remains that cases of suspected CMPA should be properly assessed using the NICE and MAP guidelines and managed accordingly.


To our members, we urge you to check the status of your local CCG by following this link and if you find there is a public consultation in your area please participate, CCGs need your views and opinions to make informed decisions, you can also lobby your local MP.'


If you live in an area where consultations have been completed and the service for providing formula has been ceased, you can get help from your local PALS unit, details can be found on your local NHS hospital or primary care service website.

We cannot stress enough how strongly we feel that GP surgeries, not only in England but in all four countries in the UK, use the MAP guidelines when CMPA is suspected. CMPA can not be managed with Hydrolysed (comfort milk) formula, it cannot be managed with Lactose free formula, and it can not be managed with soya formula when babies are under 6 months or if over 6 months where there are multiple allergies inc soya. 

The only formula that is suitable to manage CMPA are EHf and AAf formula, these formula are not available on supermarket shelves, they are only available from a pharmacist and should only be used under medical supervision, asking parents to self diagnose and manage CMPA is irresponsible, asking pharmacists to sell a medical formula without medical supervision is unethical. 


Published - 21/02/2017

Changes to Allergen Labelling laws

From December 13th 2014 there are changes to the law coming into effect about how allergens are identified on packaged food products.
New labels must emphasise the allergen within the ingredients list, products will no longer be allowed to state that a product "Contains .. (xyz).." In stead the allergens must be clearly identified within the ingredients list.
Food businesses can choose how they emphasise the allergens, for example making them BOLD, italic, underlined, or highlighted.


Currently foods purchased without packaging or upon a customer’s request, in supermarkets, deli's, cafes and restaurants, including schools & child care providers, don’t have to provide information about food allergens.

This will change from 13th December 2014.


From this date, information about any of the 14 major allergens used as ingredients will need to be provided for all foods sold or provided by schools & child care providers. The information can be kept in a file, printed on the back of the menus, or simply relayed to the consumer verbally, as long as the information is upto date and correct, it doesn't matter how it is displayed.

CMPA Support have put together an easy to understand presentation to help Nurseries, Schools and childminders to prepare for the change, and to understand the importance of effectively managing the allergies of the children in their care.

You can download a PDF version of the presentation by clicking the button below.

If you would like to order a copy of the digital presentation and additional files and templates please send an email to [email protected]

NB: The presentation is aimed at schools and childcare providers, however it will also be helpful to owners of small businesses, the document is free for anyone who wishes to use it.

Published - 18/11/2014