Join the SMILES BACK study!
Cow’s Milk Protein Allergy also known as Cows Milk Allergy, is one of the most common food allergies in the first year of life and it affects approximately 3% of infants worldwide. The aim of Medullan’s SmilesBack study is to evaluate the use of a new mHealth app that helps caregivers identify, track and report clear, accurate information to their doctors about babies’ signs and symptoms that may be related to Cow’s Milk Allergy (CMA).
If you wish to join the study please click here.
The journey from observing symptoms to getting a diagnosis can be, for many parents, a painful, stressful and lengthy process. As some CMA-related symptoms may also indicate other conditions, confirmed diagnosis can be a challenge. When a baby continues to suffer, despite many health visits and treatment attempts, the whole family can be burdened. Appropriate diagnosis and management by a healthcare professional can bring back smiles to babies and their family.
The app has been developed with primary care physicians, as well as key experts in paediatric care and allergies. This tool helps you learn more about your baby’s symptoms and easily keep track of them. The information you record is compiled in a convenient report that you can share with your child’s doctor, helping his/her evaluation.
By participating, you can increase your knowledge of CMA, easily track symptoms, and share useful information with your doctor. You can also contribute to the improvement of the tool.
You are eligible to participate if:
- You are 18 years or older
- Your child is less than 12 months old
- You live in the United Kingdom
- You use an Android smartphone with an internet connection and Operating System 4.1 and above
And your child is experiencing one of the following symptoms:
- Hard stools or constipation
- Liquid stools
- Spitting up more than half a feed, once per day
- Skin irritation (e.g., hives, rash, swelling)
- Crying more than 4 hours per day
Changes to Prescribing Baby Milk
During 2016 and continuing into 2017 many of the local CCGs within NHS England have held or are holding public consultations regarding how certain medicines, medical equipment, food items (such as gluten free foods,) and baby milk formula are prescribed.
Unfortunately in some areas these consultations have resulted in changes to how specialist formula, used for the management of CMPA may be prescribed. The CCGs for Croydon and Richmond held their consultations recently and this unfortunately has caused a lot of confusion for parents. The wording of the consultation has not been clear and at this stage it is uncertain whether EHf and AAf will still be prescribed where a patient has a primary care diagnosis of CMPA. We will update this section with any new information as and when it is released.
CMPA Support released the following statement as our official stance to all CCGs who may be considering stopping provisions of baby milk formula;
'To CCGs, CMPA Support understand the need to cut costs at GP level and support CCGs in what is an extremely difficult task. We agree with removing provisions for milk formula which are readily available in supermarkets and at a reasonable price, however we cannot support the removal of provisions for the highly specialised Ehf and AAf for babies diagnosed with CMPA. Our stance remains that cases of suspected CMPA should be properly assessed using the NICE and MAP guidelines and managed accordingly.
To our members, we urge you to check the status of your local CCG by following this link and if you find there is a public consultation in your area please participate, CCGs need your views and opinions to make informed decisions, you can also lobby your local MP.'
Published - 21/02/2017
Changes to Allergen Labelling laws
This will change from 13th December 2014.
CMPA Support have put together an easy to understand presentation to help Nurseries, Schools and childminders to prepare for the change, and to understand the importance of effectively managing the allergies of the children in their care.
You can download a PDF version of the presentation by clicking the button below.
If you would like to order a copy of the digital presentation and additional files and templates please send an email to [email protected]